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Table 5 Tweets related to treatments of spinal stenosis

From: An exploratory study to understand how people use Twitter to share experiences or information about spinal stenosis

Medication

Effects

Representative tweets

Counts

Medications

Kratom

Positive

"…Kratom relieves 75 percent my pain from fibromyalgia, arthritis, spinal stenosis, frayed meniscus, sciatica, shoulder tendinitis etc. With FDA approved medications I was bedridden using a walker and wheelchair. Taking kratom for pain I bike several or walk a couple miles daily…"

"…Kratom relieves 75% of my pain from fibromyalgia, arthritis, spinal stenosis, frayed meniscus, shoulder tendinitis, and sciatica. Taking FDA approved medications I was bedridden using a walker and wheelchair 8 years. I now walk or bike miles daily. I even rock climb"

16*

Opioid

Positive

"NSAIDs won't help my severe spinal stenosis though and small doses of opioids do. "

1

Not mentioned

"…I was on the same dosage for years (almost 10) …"

1

Lyrica

Positive

"…I thought Fibro and Spinal stenosis was bad but you really have it rough. Unfortunately CBD doesn't seem to work for me, the only thing that helps me is Lyrica…."

1

X39

Positive

"…Spinal stenosis is improving & pain reduce 90%…"

1

Tetrahydrocannabinol

Positive

" I'm right there with ya buddy (in texas) I have spinal stenosis so most days are hard on me and boy a little THC takes the pain away real quick."

1

Enbrel

Positive

"Jamie Meade has struggled with rheumatoid arthritis and spinal stenosis for 15 years…and he says Enbrel is a miracle drug…a miracle drug…"

1

Pregabalin + Gabapentin

Negative

" Gaba/Pregabalin- They are not effective for low back pain, sciatica, spinal stenosis…"

1

Pregabalin

Negative

"It would be great if pregabalin helped patients with low back pain, sciatica and spinal stenosis. It doesn’t. "

1

Cannabidiol

(CBD)

Negative

"…I thought Fibro and Spinal stenosis was bad but you really have it rough. Unfortunately CBD doesn't seem to work for me…"

1

Non-steroid anti-inflammatory drugs

Negative

"…NSAIDs won't help my severe spinal stenosis though and small doses of opioids do. It's a balance…."

1

Tramadol

Negative

"…Tramadol helps a little during daytime. Not at night."

1

Suboxone and Percocet

Not mentioned

"…I get 6 mg of Suboxone and 20 whole Percocet to combat this with… "

1

Oxycodone

Not mentioned

"…I've got cervical spinal stenosis and they had me on 120 oxycoton a month…"

2

Ibuprofen + Meloxicam

Not mentioned

"I've been prescribed ibuprofen 800 mg for years 10 plus. With opiate pain killers.. Gave up the opiates 10 months ago,rely on meloxicam / IB profen800mg.. What do we do to control spinal stenosis bulging discs and disc disease?? "

1

Surgery

Just mentioned surgeries without providing specific details

Positive

"Dr. D’Ariano has brought me back to being virtually pain free 6 weeks out of surgery. I’m a 73 year old women who had severe spinal stenosis, 3 herniated lumbar discs, and so forth!"

"…after a few surgeries I can stand again…wheelchair to get back on my feet…"

6

Negative

"I am not fake I suffer from severe spinal stenosis my bones around my spinal cord are choking my spinal cord and nerves. I'm waiting to have my 10th back surgery I'm in pain 24/7 even on very strong pain meds and nerve meds. I can't lose my insurance."

"…I had spinal stenosis this cut the exercise regime as I couldn't walk better after surgery a year ago…"

6

Not mentioned

"First symptom was foot drop and tripping. Took over a year for dx; they told her it was spinal stenosis and she had back surgery."

3

SpineJack implants

Positive

"…reduction of the retropulsed fragment, and improved spinal canal stenosis…"

1

Radiofrequency ablation

Negative

"I am 67 yrs old, I have a failed knee replacement, failed (3 each) spinal stenosis collapsed c5&6 with a bone spur. I have had radio ablation on my lumbar and neck no effect. "

1

Anterior cervical discectomy and fusion

(ACDF)

Negative

"The ACDF, didn’t take away the pain. I have congenital cervical/spinal stenosis, on top of an unstable spine full of bone spurs/osteoarthritis/and herniated Discs…"

1

ACDF at C5/6

Not mentioned

"I have an upcoming ACDF at C5/6 radiculopathy and spinal stenosis…"

1

Spinal fusion neck surgery

Not mentioned

"…He had spinal fusion neck surgery, and that should have been the end…"

1

Lower lumbar spinal fusion

Not mentioned

"I just had lower lumbar spinal fusion this past July, due to 6 months of spinal stenosis and nerve pain…"

1

Lumbar decompression

Not mentioned

"…I had a MRI and eventually a lumbar decompression…"

1

Necessity of surgery

Not mentioned

“I have spinal stenosis and facet joint arthritis…Eventually I'll probably need surgery like my aunts both did.”

3

Injection

A transforaminal epidural steroid injection (TFESI)

Positive

"…I've been able to manage the pain with TFESI…"

1

Steroids and lidocaine

Negative

" When I used to get steroids and lidocaine injected into my neck, only made it worse!…Had spinal stenosis…"

1

Other treatments

Tempur-Pedic Neck Pillows

Positive

"Max, if you are willing to spend the money the Tempur-Pedic Neck Pillows. I have profound spinal stenosis and for years had a hard time finding a pillow that could provide both support and comfort. My neurosurgeon recommended this pillow. It's amazing and worth the extra $$."

1

Mattress

Not mentioned

"I also have fibro and spinal stenosis. I have researched a lot and have decided to get a Saatva hybrid mattress with an adjustable base. I watched a lot of YouTube reviews."

1

Custom orthotics

Positive

"Custom orthotics help relieve pain and improve motion for patients with sciatica, spinal stenosis, and low back pain!…"

1

Transcutaneous electrical neurostimulation

Positive

"…I had back surgery for spinal stenosis. I understand nerve pain. Done it all. My back pain is manageable now thank God and usually not an issue. I bought a BioWave. Helps a lot."

1

Negative

" I have spinal stenosis, sciatic in both legs and the fibromyalgia. It sucks. I have bad neuropathy many nights.Oh, I have a TENS, doesn't help…"

 

Hot water

Positive

"… Good for spinal stenosis to have hot water jets hitting that area. Have a relaxing and healing time! "

1

Hot tub

Negative

"Once upon a time I was 5′9", and then spinal stenosis caused my spine to twist and I am only 5′6" tall, and shrinking. Staying out of the hot tub has helped a little!…"

1

Physiotherapy

Positive

"I've had 8 surgeries for osteophytes and stenosis. Get a good PT. Try manual traction, maybe a traction unit if it's spinal or thoracic. Do chin tucks, gentle isometric exercise and stretching but nothing that hurts. Get in a pool if you can, i swim high for the pain. "

1

Massage

Positive

"I have a history of 3 car accidents, spinal stenosis, herniated disks, piriformis syndrome and on…I have therapeutic massage regularly too. Back pain relief is a process."

1

Working on the farm

Positive

"I have spinal stenosis in my neck and spine but I've found that the movement of working on the farm has helped me tremendously I just take it slow and steady and use things to make it easier. Better than physical therapy ever did."

1

Stretching, walking, and ice therapy

Positive:

"…But now I have spinal stenosis. I found stretching, walking and ice the best treatment. "

1

Artisan plant

Positive

"…Been a long day and my shoulder tendonitis is acting up along with my fibromyalgia, arthritis, spinal stenosis and sciatica. So thankful not take pain meds anymore. Artisan Botanicals "

1

  1. *All tweets started with a sentence stating that Kratom relieves 75% of pain (n = 16). The second half of the tweets might mention not using a walker and a wheelchair (n = 1); or able to walk or bike, even rock climbing (n = 2); bike or walk (n = 1); or rock climbing (n = 1)